Announcements and Links

Organizations and Recommended Websites:

The first three websites have links to help find medical providers:

Lyme Disease Association, Inc.

ILADS

Lyme Disease.Org

The International Lyme and Associated Diseases Education Foundation

Sister organization to ILADS with mission of training physicians and supporting research

Global Lyme Alliance

The International Society for Environmentally Acquired Illness

Co-founded by Tucsonian Mary Ackerley, MD, ISEAI is a nonprofit professional medical society 

Environmental Analytics

For mold and indoor air quality testing

Lyme Disease Information:

How to Handle a Tick Bite

Lyme 101 from ILADS

The History of Lyme Disease 42 minute video with Joseph Burrascano, MD 

Paving the Way for Better Lyme Diagnostic Tests

Borrellia Spirochetes Are Masters at Evading the Immune System

Chronic Lyme Do's and Dont's

Diagnostics/Testing: 

Lyme Disease Testing- Lyme Disease.org

Lyme Disease Testing Global Lyme Alliance

Choosing a Lyme Disease Test- Daniel Cameron, MD

To Test or Not to Test

Better Lyme Diagnostic Tests

Tick Testing:  

IGENEX

Clongen Laboratories

Bay Area Lyme Foundation 

Note: These are examples of tick testing labs.  There are usually charges for these services. We do not make recommendations about whether people should have ticks tested, reliability of tick testing, or whether people should wait for the results before seeking/getting treatment. Those are decisions that need to be made after reviewing material on the topic and discussing the benefits/risks with a professional.  

Children and Lyme Disease:

Facebook Group: When Your Child Has Lyme

Prevalence:

US Lyme Disease Reported Case MapsCheck out the numbers of Lyme Disease cases in the US https://invisible.international/lyme-disease-case-maps/

CAPC:  Incidence of Lyme Disease in Dogs

Go to this website and hover over and click on various parts of any state. You can see the incidence of Lyme in dogs for each county. The actual incidence is a least 30 times that of what's diagnosed and reported on the map, since they are testing a limited number of dogs. If you sign up, you will receive a similar email monthly. It's helpful data to show to providers who may insist that we don't have Lyme in Arizona. 

Lyme Disease as Epidemic/Pandemic: 

Time to Designate Lyme Disease a Pandemic Article by Daniel Cameron, MD.  

Prevention:  

Preventing Tick bites

Rynoskin clothing

Chemical Free Clothing for Tick Bite Prevention. It is ultra light and worn underneath regular clothing. It prevents ticks, mosquitoes, chiggers, black flies, ants, no-see-ums, and other biting insects from entering through clothing to reach the skin to feed/bite. 

Education, Training, CME:  

Lyme Disease Basics for Providers

Lyme CME Free evidence based Continuing Education for Physicians

Please encourage all your physicians to take these free courses. Physicians need to take a certain number of CME courses each year to keep their licenses.  

ILADS upcoming and Past Conferences 2020 ILADS conference will be virtual/online Septem per 10-13, 2020.  

Treatment:

Controversies and Challenges in Treating Lyme/TBD -ILADS

Recent research on the importance of persister drug regimens

Biofilms and stationary phase persister forms of Bb are resistant to commonly used antibiotics and can explain in part persistent symptoms. Recent papers outline the important of persister drug regimens.  200 patients with Chronic Lyme/PTLDS where dapsone combination therapy was shown to be effective for major Lyme symptoms.  

To Treat Lyme Disease Focus on the Co-infections

Super responders are key to  personalized Lyme treatment

34%of patients are high treatment responders (from mylymedata.org) meaning that they reported that after taking antibiotics their symptoms improved moderately to a very great deal. 

Wellness Center at Pike Family Health Center

Clinic in Lords Valley, PA that accepts major insurances that provides diagnostic testing and verification of tick borne diseases for adults.    Also, patients who have already been diagnosed and are seeking advice or management of current symptoms are also eligible for care at the center.  

Co-infections:

Co-infections General Information- Lyme Disease.org

Video on Co-infections by Daniel Cameron, MD

Podcast on Co-infections- Global Lyme Alliance

Lyme Basics- What is Babesia

Bartonella Podcast by Dr. Ed Breitschwerdt

Bartonella, a bacteria most commonly associated with cat scratch disease which until recently was thought to be a short-lived or self-limiting infection. What is new is the association of Bartonella with a wide variety of ailments, many of them chronic and some of them life-threatening.  

Books:

Lyme Disease Supercharge: The Revolutionary Approach to Getting Better when All Else Fails

New book by Bryan Rosner; Published in March 2019  .

An Experts Guide to the Science of Lyme Disease by Daniel Cameron, MDDecember 2017

How Can I Get Better?

By Richard Horowitz, MD, February 2017 This guidebook helps individuals identify their symptoms, and figure out where to go next. It is a follow-up to “Why Can't I Get Better?”

The Everything Guide to Lyme Disease

By Rafal Tokarz, PhD., an associate research scientist at the Center for Infection and Immunity at Columbia. Explains the debate over "chronic Lyme disease."

Lyme: The First Epidemic of Climate Change By Mary Beth Pfeiffer April, 2018

https://recipesforrepair.com/about/

A Program to Combat Chronic Inflammation and Identify Food Sensitivities” by Gail and Laura Piazza (2016)

Antigerm Action Plans for Lyme Disease

Renowned expert Marty Ross, MD provides step-by-step practical guides for you. Based on nearly 20 years of experience treating thousands of Lyme disease patients. Includes the full Ross Lyme Support Protocol.  Book download is free if joining his email list.  

Research:

Leading Research-ILADS Published research articles authored by ILADS members

Journal of Spirochetal and Tick-borne Diseases

ILADS provides free  access to back issues of the Journal of Spirochetal and Tick-Borne Diseases dating from 1994-2002.

Data, Policy and Strategic Planning:

My Lyme Data

MyLymeData is one of the largest patient-driven registries in the nation, with nearly 12,000 patients enrolled. It was created by patients, is run by patients and will address the issues that Lyme disease patients care about. If you are enrolled in MyLymeData, we thank you for providing the data that will accelerate the pace of research in Lyme disease. If you are not enrolled, please do so today. 

Tick Borne Working Group/ Health and Human Services