Tucson/ LDASA Winter Meetings
All are welcome! We are continuing to meet every other month. No membership. Open to people with Lyme and other Vector-Borne Diseases (or
being evaluated for it), their family and friends, providers, and researchers.
November 12th – Woods Branch Library (3455 N. 1st Ave. South of Prince Rd.
Tucson) 2nd room on right.
2-3 pm: video/slides from Dr. Burrascano’s recent lecture on Integrating Pharmaceuticals and Nutritionals to Optimize Patient Vector-Borne Disease Outcomes
(The new film, The Quiet Epidemic, is being rescheduled to 2023 due to public availability)
3-4 pm: Support group
2-4 pm: Annual Winter Holiday luncheon
Location- Caffe Torino - Authentic Northern Italian Cuisine. Price range $12-$18, or just join us for a beverage.
January 2023 No Meeting
February 11th Reserve your library book now:
2-3 pm: Book discussion of Invisible Kingdom: Reimaging Chronic Illness by Meghan O’Rourke.
A New York Times bestseller. There are numerous copies available from the library.
“A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease
syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier”.
3-4 pm: Group Support
For questions or more information contact:
Tax deductible donations are gratefully accepted. Please send a check to:
PO Box 35637
Tucson AZ 85740
Volunteers needed! Anyone out there with experience doing surveys?
Announcements and links are here: https://ldasa.org/announcements-and-links
Facebook page: https://www.facebook.com/LymeSouthernAZ
All information posted on this site is provided for educational purposes only. It is not to be construed as medical advice regarding the treatment of any symptoms or disease. You should obtain medical advice of your personal physician before pursuing any treatment mentioned here.
Organizations and Recommended Websites:
The first three websites have links to help find medical providers:
Sister organization to ILADS with mission of training physicians and supporting research
Co-founded by Tucsonian Mary Ackerley, MD, ISEAI is a nonprofit professional medical society
For mold and indoor air quality testing
Lyme Disease Information:
The History of Lyme Disease 42 minute video with Joseph Burrascano, MD
Note: These are examples of tick testing labs. There are usually charges for these services. We do not make recommendations about whether people should have ticks tested, reliability of tick testing, or whether people should wait for the results before seeking/getting treatment. Those are decisions that need to be made after reviewing material on the topic and discussing the benefits/risks with a professional.
Children and Lyme Disease:
Practical guidance on how to prevent, screen, treat, and educate children about Lyme Disease
Check out the numbers of Lyme Disease cases in the US
Go to this website and hover over and click on various parts of any state. You can see the incidence of Lyme in dogs for each county. The actual incidence is a least 30 times that of what's diagnosed and reported on the map, since they are testing a limited number of dogs. If you sign up, you will receive a similar email monthly. It's helpful data to show to providers who may insist that we don't have Lyme in Arizona.
Lyme Disease as Epidemic/Pandemic:
Time to Designate Lyme Disease a Pandemic Article by Daniel Cameron, MD.
Chemical Free Clothing for Tick Bite Prevention. It is ultra light and worn underneath regular clothing. It prevents ticks, mosquitoes, chiggers, black flies, ants, no-see-ums, and other biting insects from entering through clothing to reach the skin to feed/bite.
Education, Training, CME:
Please encourage all your physicians to take these free courses. Physicians need to take a certain number of CME courses each year to keep their licenses.
ILADS upcoming and Past Conferences 2020 ILADS conference will be virtual/online Septem per 10-13, 2020.
Biofilms and stationary phase persister forms of Bb are resistant to commonly used antibiotics and can explain in part persistent symptoms. Recent papers outline the important of persister drug regimens. 200 patients with Chronic Lyme/PTLDS where dapsone combination therapy was shown to be effective for major Lyme symptoms.
34%of patients are high treatment responders (from mylymedata.org) meaning that they reported that after taking antibiotics their symptoms improved moderately to a very great deal.
Clinic in Lords Valley, PA that accepts major insurances that provides diagnostic testing and verification of tick borne diseases for adults. Also, patients who have already been diagnosed and are seeking advice or management of current symptoms are also eligible for care at the center.
Bartonella, a bacteria most commonly associated with cat scratch disease which until recently was thought to be a short-lived or self-limiting infection. What is new is the association of Bartonella with a wide variety of ailments, many of them chronic and some of them life-threatening.
New book by Bryan Rosner; Published in March 2019
by Connie Strasheim who battled severe insomnia for years. She shares insights and possible answers to this condition in her book, which is now out in paperback format
By Kris Newby, May, 2019
While on vacation on Martha’s Vineyard, Kris Newby was bitten by an unseen tick. That one bite changed her life forever, pulling her into the abyss of a devastating illness that took ten doctors to diagnose and years to recover.
By Neil Nathan, MD, a resource book for patients and practitioners. Dr. Nathan has zeroed in on the reality of Toxicity and Chronic Disease, while providing cutting edge insights into the most effective therapies.
By Richard Horowitz, MD, February 2017 This guidebook helps individuals identify their symptoms, and figure out where to go next. It is a follow-up to “Why Can't I Get Better?”
By Rafal Tokarz, PhD., an associate research scientist at the Center for Infection and Immunity at Columbia. Explains the debate over "chronic Lyme disease."
Lyme: The First Epidemic of Climate Change By Mary Beth Pfeiffer April, 2018
A Program to Combat Chronic Inflammation and Identify Food Sensitivities” by Gail and Laura Piazza (2016)
Renowned expert Marty Ross, MD provides step-by-step practical guides for you. Based on nearly 20 years of experience treating thousands of Lyme disease patients. Includes the full Ross Lyme Support Protocol. Book download is free if joining his email list.
Leading Research-ILADS Published research articles authored by ILADS members
ILADS provides free access to back issues of the Journal of Spirochetal and Tick-Borne Diseases dating from 1994-2002.
Data, Policy and Strategic Planning:
MyLymeData is one of the largest patient-driven registries in the nation, with nearly 12,000 patients enrolled. It was created by patients, is run by patients and will address the issues that Lyme disease patients care about. If you are enrolled in MyLymeData, we thank you for providing the data that will accelerate the pace of research in Lyme disease. If you are not enrolled, please do so today.